At 15 years old, I had bone cancer and one of the chemo drugs gave me heart failure. At 39 years old, I had a heart transplant. 4 months after my transplant, I discovered I had breast cancer. I had a double mastectomy, then weeks later and just 2 days before my 41st birthday, my … Continue reading A Little About My Journey: Heart Transplant & Cancers
For over a month I've been fighting a stomach bug. At the same time, the US gov't has been in a historic, longest ever shutdown. Maybe together me and Uncle Sam are finally on the mend.
Life after a heart transplant has a new set of unique challenges.
Last week was difficult. While I got the all clear to finally drive again after shoulder surgery, I also got a PICC line for IV antibiotics. I have recurrent drug resistant urinary tract infections (UTI's). I've done this so many times, I'm bored with it. I'm also angry because I've had to cancel trips that … Continue reading Chronic Illness & Cancelling Plans: The Story of My Life…
Dear Breast Cancer Patient, Are you trying to decide between lumpectomy vs mastectomy? Unilateral vs bilateral? To have reconstruction or be flat chested? It's fucking overwhelming. I can't tell you what to do, but I can tell you what I did. I was diagnosed with DCIS (ductal carcinoma in situ) only three months after my … Continue reading Breast Cancer: So Many Decisions, What Should I Do?
5am. Today's the day for my long awaited shoulder surgery! Dr. Khazzam (bam!) will be "staple gunning" my dislocating shoulder back on and then doing a bone transfer to repair the bone knocked away from each of my 6 dislocations. Adam is at my side and here's our obligatory hospital picture, were both blurry eyed … Continue reading Shoulder Surgery Today!
Last week, I was at a resturant during a large gather of visually impaired individuals. As the state capital, Austin has a large community of those whom are visually impaired, deaf & hard of hearing individuals. The group was in a party room in the back of the restaurant. To get to the restroom, exit … Continue reading Be kind ‘Merica!
Warning: This article may trigger feelings of fear and discomfort if you need a heart transplant, and like most of us also have financial concerns about paying for it. Please know that there are resources out there to help transplant recipients, ask you hospital social worker. I wrote this blog based on my individual experience … Continue reading How Much Does a Heart Transplant Cost?